Tag Archives: Abandonment Issues

How I felt In 2013, How I Feel Now About My Family

This post is derived from a post from November 2013 that came up in my Facebook memories this morning about the biological family I was borne into.

Because the holiday season always brings old family memories to the surface. Whether good or bad.

Some of us are blessed to have supportive accepting families.

Some of us…are not..so we create chosen families where we do fit in and belong. I now have a wonderful chosen family made up of my two current caregivers, and a handful of close Facebook friends.

And it is even worse when you were born fully neurodivergent instead of neurotypical. And you grow up feeling like you are an outsider, like you are never good enough, and you don’t fit in or belong anywhere. Because you’re thought of as too weird and too different. And yes, even the dreaded R word.

Othered. Less-than. It. Retarded. Please know why that word is a bad word and don’t use it anymore, even as slang, because it is a Disability slur. It is every bit as bad as the N word is to Black People.

I do want to say this: Part of my family do accept and support me—my mom, and two of my sisters: my second eldest one who lives with my mom, and my eldest one who lives in Arizona.

The one who live in AZ, I was very, very close to as a child, but then when I entered high school, she and I grew apart, and did not become close again until 1994 when, at the encouragement of my then psychologist I was seeing at the time, I wrote a long open letter to my whole family to let them know how much they have hurt me, and my eldest sister was one of the only ones who took my words to heart, and she was able to call me and fully acknowledge and deeply apologize for her part in all of my hurts from my time of growing up in the Fields Family.

The following is a post I wrote from November 2013 that came up in my Facebook memories this morning. It was written on Thanksgiving Day 2013, or rather what I now refer to as Indigenous People’s Day Of Mourning. Because even though I still celebrate it to give thanks for my many blessings, and to eat good food, and hang out with my chosen family, I now know the true, and sadly, very ugly history behind this holiday, and you should Google it too, just Google #WeLiveOnStolenLand, Indigenous Day Of Mourning, and what you need to know about what really happened on Thanksgiving Day.

But that is for another day for me to blog about. And I will.

My post, re-edited, from November 2013:

I am still seriously sorry I was born into my particular biological family….and wish I could just divorce most of them.

Today, trying to talk to my mom, she reaffirmed just how much my middle sister who has me blocked on Facebook still holds me responsible for her suffering all of her life. This sister thinks that I “act” the way I do on purpose, and seems to feel as if I am a burden to be ridiculed, shamed, shunned and ignored by my family.

They just seem to want me to go away silently.

I am not going to do that.

I still to this DAY, wish to God I could be adopted by a nice family who will help me by being here for me and helping me to finally get the help I need so I can work to salvage what is left of my health, life, and joy.

My middle sister never has liked me. But it’s totally on her. I did nothing to hurt her, except to be born the completely neurodivergent goofy silly Autistic me I have always been. Growing up, I was merely reacting always to the way she always beat me down with her words and her intolerance of me, all of my life.

She would never let me touch her hair, which was long reddish-copper-auburn and silky shiny. Shiny hair has always fascinated me to a level of excitement that only an Autistic person would understand. Shiny hair has always been one of my main go-to Autistic stims, and she hated me for it. Hated me for all of my goofyness. Hated me because of how I drew all the time, and how I was always drawing pictures of my imaginary friends. Imaginary friends I have always turned to to cope with a fully ableistic world that still to this day does not get autistic people.

All of my life I have felt I was the cause of my family’s stomach aches, headaches, and anything negative that happened to them. I was always told that too. My mother would often refer to me as her penance. Yes, there were often times when my own mom would turn against me. Which only added to my hurt and trauma.

I always felt like I had to apologize for just being me. My mom, whom I love dearly, and who, for the most part, IS in my corner, even was always very embarrassed by me. Because I have always had a loud voice, and have always been a very forward and outspoken person. Like, no filter outspoken.

My father? Was a monster who I both feared and hated, because he never accepted me. I was beaten, thrown in my room, screamed at, roared at, even for my likes, quirks, and opinions because they always differed from his narrow conservative intolerant ones.

Yes, he put a roof over our heads, fed and clothed us. But if he didn’t like you, he came down HARD on you with hellfire and brimstone and death. That is how I always felt around my father. Like I was always <thisclose> to death itself.

I was never allowed to talk at the dinner table, other than to say “Please pass the salt, please pass the potatoes” type of thing. I would get sent to my room, and / or spanked. Worse yet, he would pull hard on my ears, or my hair really hard to get me to mind him. He would also hit me on my face and head. If I didn’t do as he said, he would beat me and throw me in my room. I couldn’t even joke with him. Or show him a drawing at the dinner table. That would get me beaten and thrown into my bedroom with the door locked—from the outside.

He hated it when I would walk in front of the TV when his football and baseball games were on, even though the bathroom was in the path of the family TV.

In sixth grade, through the end of my Freshman year in high school, I went through a long period of time where I was quieter, and more afraid to talk and be myself because I was tired of being chastised and told how weird and different I was.

This was from 6th through 9th grade, then in 10th grade, I began running away and having explosive temper spells, and meltdowns. I would regularly break chairs and kick holes in doors and walls…..because I was never being heard and listened to.

It was unbearable frustration for me to be in a family with so many hierarchies, so many unwritten rules, and do’s and don’ts, that it caused a great volcano of anger in me. Anger that stemmed from all of the hurt and rejection of me as the person I was.

I ran away four times that year, because I longed to find a family who would see me as a human being and take me in. I felt in a new family, I would finally be loved, finally be accepted and that I would finally be popular at school too.

Also when I was a sophomore, right when school began for all of us kids, my little brother suddenly without explanation or reason, became a literal angry demon towards me and began glaring at me every night at the dinner table.

He would growl diabolically at me, and say things like “Huuuumphaaaaaa!” and call me names like “Pig-aaat!” And say, over and over again, that I was not a part of my own family.

His whole face would contort into such hate it frightened me to pieces. It got so bad, I began to eat my dinner every night in my room. I had to literally beg my mom to talk to him to make him stop this. And he wouldn’t. He was eleven. I was a Sophomore in high school.

I couldn’t even watch TV with the family at night anymore because of how he began treating me. I had to miss shows I loved, like the new “One Day At A Time” show that came out that year on CBS, that had Mackenzie Phillips and Valerie Bertinelli who starred as two teenagers of a single mom who lived in Indianapolis, Indiana.

At Christmas that year, I did participate with the family, but my eldest sister, the one who now lives in AZ, who I was NOT getting along with at the time, placed a huge box right in front of me, cutting me totally off from the others when we were all talking at our dinner table after dinner and the opening of our presents.

Deeply hurt, I went into my room, in huge heartbroken tears, and my middle sister who has mostly blamed me for all of her suffering, the one who today has me blocked on her Facebook, actually saw my eldest sister do this, noticed how I immediately got up from the table to go in my bedroom, and she came into my bedroom along with my mom, actually FULL of compassion for me, and promised me from then on, she was going to be kinder to me, and not do things to make me feel left out anymore.

I got along very well with my middle sister from then on, until 1991, when she moved to Idaho. From then on, she has slowly turned against me again. No, it didn’t happen all at once, but as I kept calling her to complain about the bullies next door, and across the street, it seemed to sour her on all things me again.

The majority of my Sophomore year of high school, I continued to have to spend most of my time in my bedroom after school, and still could not even watch TV with the family because of my little brother and how mean he got towards me, with the awful looks and awful remarks he would make.

To this day, I am fully estranged from him. Even though he did realize how mean he was being the summer after my Soph year, and he stopped for awhile, when he got married to his second wife in 1989, he began to shun me, and began telling my mom, his new wife and his two kids even, that he was afraid of me because of how I began to pick on him after he got mean to me. He says that I was mean to him.

It was my reaction to how he was suddenly treating me, because I literally couldn’t handle it. It was too much for me to bear being in the same room as him when he was in demon mode.

Remember, he was eleven when this happened, old enough, I felt, to know right from wrong, and he chose to literally cause me to have to self isolate for one whole year of high school and then again, the first semester of my Senior year, when he again went into demon mode on me. When I was a senior, he already knew what it did to me when he would go demon on me. He already knew how it literally sent me into a full mental tailspin. He was thirteen then, and he knew.

This time it wasn’t just me, but he also went full-on demon on my sweet angel of a friend Kathy who would have never hurt a fly,….and treated her mean too, when she came to stay with me to go to a family reunion with us.

In 1999 when I drove all by myself to visit my family who most of them had already moved to Idaho, my brother avoided me completely.

In 2005 when my mom was here visiting me from Idaho (she moved there too in 1996), she was talking to him on my kitchen phone one afternoon, and him just hearing me in the background, yes, I was having a meltdown that afternoon because of a thing my mom had done to my bedroom drawer–she had gone in and rearranged it without my consent, and him hearing me upset, he literally told my mom that if I moved to Idaho, he would have to stop having the family barbecues. Because, as he told my mom that afternoon, my being there would ruin the family BBQ’s for him. In other words, even in 2005, he still did not consider me to be a part of my own family.

The ONLY things I am guilty of with my baby brother, is becoming hypervigilant with him after he suddenly turned on me my Soph year of high school–meaning, yes, I did begin picking on him to make sure he would not be mean to me ever again, and when he would get mean behind my mom’s back then lie to my mom about it–well, that made it all the worse for me. Because my mom would believe him.

And, also, when we were kids, I loved my baby brother. He was my playmate, my best childhood friend. And yes, when I began going through puberty, I did start pushing him away…..because, well, puberty was happening, and I wanted to be like all the OLDER kids in my family, not him anymore. If only I could go back and undo me pushing my baby brother away, when all he wanted to do was play with his kid sister. Because he had been so used to me playing with him all the time….when we both were children.

So yes, I am guilty, of pushing him away, when he wanted to play, and then of picking on him after his demon mode began manifesting.

And to my baby brother, I am so, so sorry for pushing you away, when you still thought of me as your kid sister. Can you ever forgive me for my cruelty, for shutting you out of my life the way I did?

My sister, the one who has me blocked on her Facebook? Has reverted back to hating and blaming me for all of her suffering. To my middle sister, whatever it is I did to cause you so much agony…I still don’t know or understand to this day, but If I ever did do or say anything to hurt you in our times together as a family, I am also sorry and ask for your forgiveness.

I’m not writing this, nor writing my life story, to maliciously bad-mouth my family. It was NEVER my purpose in going online first on Tricia Kenney’s BlogTalk Radio Embrace Autism Show, and then in blogs, and more radio shows and YouTube videos. My reasons for telling my particular life story, have always been, and are, purely to educate you who read and listen, on how it is to be Autistic, and also so my bio family finally gets why I was the way I was, and will finally stop hating and shunning me for it!

I didn’t find out I’m Autistic until a week before I turned 39 years old, in May of 1999. Back then, I got labeled as having Asperger’s, and now I hate that term and reject it as the one who invented the term, Hans Asperger, was a Nazi who hated Disabled people.

I am also non-binary, and queer. I have always felt sexual attraction to all genders, not just cis hetero male.

Today, I also have end stage stage five kidney disease, and have been on in center hemo dialysis for three and a half years now.

As I have grown, I have had many more traumatic experiences with past caregivers, and past friends, who either could no longer handle being friends with me or just were total douchebags. Many of these experiences were very scary, and they have also contributed to the C-PTSD trauma that I walk with today. I have deep trust and abandonment issues today and am ultra sensitive and hypervigilant because of how so many still don’t get Autism or Autistic people.

So, this is why I write. Because my pain, this pain I carry, is so deep, pervasive, and never-ending.

I am not a monster. I am Autistic. I was born Autistic. I am going to die Autistic. There is no cure or fix for my Autism…and no one should try to cure and fix us.

Every holiday season I mourn for what I could have had with my biological family all those years and seasons—for what I still could have—if only we could sit down and have the hard conversations that it’s going to take, and not walk away, but face it all, once and for all, what was done, what was said, what we all felt, just get it out in the open.

I am willing. I don’t know how much time I have left on Mother Earth, and I want to make the effort to try to heal what happened between me and my middle sister and the two brothers I have left on Mother Earth. I now that my eldest brother who is now in Heaven now knows, because I know he comes to visit me now that he is on the other side. I think he has become one of my Guardian Angels.

I feel my late brother Ed’s presence quite often ever since his passing in May 2018, especially when I am in distress, when I’m sad, hurting and depressed and I just feel like I want to give up on everything.

It is because of him, my mom, my two sisters, my two caregivers, my one caregiver’s son, and the friends I have made through Facebook’s Autistic / Disability Community, that I have not yet given up.

Thank you, and Happy Holidays.

I Am Autistic, Not Spoiled

midnight-auroras-lake-superior-michigan

I am Autistic
I am not a behavior problem
I am not a faulty broken appliance
My Autism
is a neurological developmental disability
That i cannot just take on and off
like one takes on and off their jacket or clothing
I cannot help it that i am easily triggered by
Abrupt changes
Changes happening that happens
without my first being told about it
and prepared for it
Harsh impatient angry tones of voice
Harsh impatient angry looks on the faces of others
Certain foods
Certain songs
Certain smells and scents
Certain atmospheres
Certain textures
Certain lighting,
especially if it is intensely strobe-like
The dark
Being chided or made fun of
Being told i said or did this or that
when i know i didn’t say or do that thing
Being told things are a certain way
when i knew they were another way
I am ultra sensitive to being criticized,
talked down to, condescended to and yelled at
Please understand when i am having a meltdown
it is not a temper tantrum
the meltdown has happened because
something has triggered me and
caused me sensory pain and anguish
sensory pain and anguish that is very real to me
As if i was being actually physically hit
or stabbed or whipped
it is especially at that time that
i need to be treated gently
My Autism cannot be fixed or cured
or scolded and yelled away
Nor can i separate myself from my Autism
It IS a part of me
It is all of who i am
My Autism does define me
It defines all of who i am
God made me and all other Autistic people
Please understand that I am me,
i cannot be and act the normal
that the world wants me to be.
Please understand this.
I love you, everyone.
I love you all,
and i really hurt when i feel
people don’t love and care about me.
Please let me be me and
don’t hate me for being my Actually Autistic me.

Rivers Of Anguish, Rivers Of Hope

Below are some of my latest posts. Because i am needing to write. because i really do need help. Because i really do need a way out of this jail i am trapped in. This jail that is made up of my toxic neighborhood, and the tiny 550 square foot box that i am confined to.

Sunday, Sept. 18, 2016–7:03 AM

“Oh boy, the sun is up early!! GRRRRRRRRRR!!! 😡 It’s gonna be hot today….i am so not looking forward to that!!! 😡

Grumpy me is going back to bed because it is still nice and cool right now, and i will just hope for the best, that my house doesn’t warm up too badly.

Just…..GRRRRRRRRRRRR!!!! 😡 ”

Sunday Sept. 18, 2016–2:53 PM

“Oh God, this is AWFUL!!!!!!!!!! My living room is an awful hotter than Hades OVEN this afternoon—-i should have had the A/C window open—-it is not, and I AM SUFFERING HOLY HELL!!!!!!!”

Sunday Sept. 18, 2016–4:14 PM

“I am okay now. My mom called the fire dept. for me, and they sent a nice police officer over to open my A/C window, so now i have the A/C going, and my living room is cooling off nicely. It got very HOT today, and i was almost ready to suffer heat exhaustion. Because here in my living room, it felt like it was 100 degrees. I was seriously burning up.

I REALLY hate my Sundays though, because i am alone with no one to help me at all on Sundays. At least i know i can call the fire dept or police if need be.

I think i will go cry now. I really feel like crying now. 😥 I HATE having to be alone anymore!!!! 😥 “

Sunday Sept. 18, 2016–5:10 PM

“I am glad i did not have to die in my hot living room today, very thankful for the nice police officer who opened my air conditioner window for me—very thankful that my air conditioner still works!!! 🙂 “

Sunday Sept. 18, 2016–6:09 PM

“The KSBY website says Santa Maria is still at 80 degrees as of now. YIKES!!!! :O “

Sunday Sept. 18, 2016–6:56 PM

“I am glad the sun is setting now. I really want to move where it doesn’t get hot like this!! Yes, i am serious about this!! Because……i actually had to get a police officer to come to open my A/C window today because i was getting overheated to where i was going to pass out.

I had my mom call the fire dept. to do this, but instead, a nice police officer showed up to open the window for me.

Like i say—i’m glad i had this help. Otherwise i would have had to call an ambulance.

I am going to go eat dinner now.”

Sunday Sept. 18, 2016–8:44 PM

“Here are the places i would go if i could still drive and still had a car—but i had someone who would go with me so i am not having to go all alone:
*The San Luis Obispo Farmer’s Market
*Avila Beach/Harford Pier/Pismo Beach/Shell Beach
*Avila Valley Barn
*The movies
*Panera Bread
*Solvang/Los Alamos
*Downtown Friday Nights farmer’s Market
*Applebee’s
*Cool Hand Luke’s for ribs
*San Luis Obispo downtown/the mission
*Morro Bay/Cambria/San Simeon
*Crumbles Restaurant
*F. McKlintock’s for ribs
*Woodstock’s Pizza
*Waller Park
*a nice laid back church that accepts Neurodiverse, LGBTQ, and all marginalized people
I wish i had local friends who would take me to these places. I wish i was not all alone. I wish my family cared about me. I wish i was not in this trap, this cage i am in.”

9:43 PM

“I just watched the news as it was on after the Sunday night NFL football game, and found out that today’s temp in Santa Maria got up to 96 sizzling hot degrees. No wonder i was having heart palpitations, and feeling hot, flushed, and like i was going to pass out!!

If i had not of had my mom call to get someone over here—-a nice police officer came—-to open my air conditioner window, i could have died today. I am still feeling very rattled, and am now afraid to turn off the air conditioner for fear i will feel like passing out again.

96 degrees is way too hot for someone like me to have to sit in a living room that has turned into a hot oven; because of my leg condition, and i am also 3x to 4x plus-sized, with a new problem: low kidney function….i cannot get by without the air conditioner.

I am going to have potato chips dipped in ketchup now. Because that is what i am craving. I am also craving soft and doughy homemade sugar cookies. But i don’t have those, so….yeah…..

I hate my Sundays on desert island!! 😥 “

9:44 PM

“Yes, 96 degrees is way too hot for me!!! 😦 “

I then posted memes about Autumn, because i love that season, when the leaves all turn such beautiful colors, and the days are just warm enough to be comfortable, and the nights are nice and cool. I also posted a meme about all of the soft and doughy looking Christmas cookies i would love to have this Christmas.

I really am alone, and so lonely for local friends.
I am lonely to have more caring people in my life.
I am sad because most of my family coldly ignore me.
I am in pain all the time because of my legs, and this leg tumor makes it so hard to even sit and enjoy my computer.
This Spring and every Spring now when the hills are bright green from our winter rains, i always miss getting to get out on drives to see them and take pictures of them.
I long to live where i can see beauty outside—not these ugly yellow tin buildings all day long.

I am hoping that i can at least get my own speed radar trailer. I made a Go Fund Me page for that, and to also raise the money for a move to a place whee i will have the above things i so long to have.

I so hope someone will help me, please.

https://www.gofundme.com/2ckkdc4

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Please Stop & Listen To Me–I Need More Allies & Friends

I have spent the past several hours sleeping, and plan to sleep more.
I sleep all the time because i am not happy anymore.
I need the police to be real allies to me.
I need for them to stop ignoring me.
I need to have the speed trailer back on my street.
I need for my legs to work again, for this awful leg tumor to be gone.
I need for my next door neighbors to hurry up and move, because of the tension they still cause for me.
I need in real life local friends who will be willing to take me places so i can get out of this box once in a while.
I need for my family to wake up and start caring and understanding and accepting me as i am.
I need them to learn about my Autism and understand it once and for all.
I am tired on all levels.
It is a deep tired of all of my lifetime goals being lost to me.
A deep tired of not having things to look forward to and hope for anymore.
I dread each day because of the street noise and the next door neighbors.
This needs to change.
It isn’t just me, it is many elderly and disabled people who are in this same or similar boat.
Society throws us away and ignores us because we are too inconvenient to them.
We need for you to all care, to get in the cubby hole under the stairs and sit there with us, when we go in there, instead of yelling at us to get out of there.
What harm would it do to let me play with your shiny hair, big sister?
What harm would it do to listen to the story i have told, to see why i told it, to understand why i told my story—-which is because you all have essentially left me to live alone and lonely my whole life, always on the outside, always on the fringes.
I was always the last one to know things.
Please don’t tell your Autistic/Disabled children/kids/relatives
that they will never date
never drive
never have a job
never have friends or romantic relationships
or that they don’t know what’s going on or how to think for themselves
that is Othering and making us feel like we are wrong, less than and don’t belong when we DO belong.
Remember this:
Children are developing human beings, and even though we may develop at a different pace, does not mean we won’t be able to do all the above things.
We are still human beings, capable of great success, all our families have to do is BELIEVE in us and not ignore and discard us to sit alone in our rooms.
Many a time i would sit alone in my room and cry wondering why you all hated me?
God made us, and God did not make and does not make mistakes, so why do you so easily discard us?
Think about it….please listen to me because my health is now failing and i honestly do not know whether i will be around that much longer because of my health issues.
Yes, i needed to write this.
Yes, everyone needs to read this and take this to heart.
I do not want to be alone anymore. It hurts like hell to be alone.
This is why i have turned to certain roads, highways and electronics and made them imaginary friends.
This is why i made a friend out of the speed trailer when it was here.
Exactly why.
I hope and pray i get that back within the next two weeks, maybe even this week.
Yes, because it’s my friend and i feel it protects me when it is here.
I loved to sit outside and watch it working, so i hope it goes back on my side of the street again where i can easily watch it working again.
But it also makes people drive the speed limit, even slower, and lessens the loudness of the noise, and it also takes care of the loud hot rodding too.
Please, God, let this week be the start of life getting better for me again.
Thank you.

My Go Fund Me:  https://www.gofundme.com/2ckkdc4

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Alone, & So Lonely I May As Well Live In An 8ft by 10ft Jail Cell

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I, Melissa Fields, an Autistic adult—-yes, we exist, and yes, there are lots and lots and LOTS of us out there if people would just take the time to see, hear, look, listen to us and treat and respect us as the human beings we are—- had to stop driving in April of 2012 for three reasons——-

because i was becoming too afraid of going places—-anywhere—- by myself, because of all of the meltdowns i was having in public whenever i was faced with ableism from people—people who did not get my Autism and sensory issues, who would get angry with me and escalate an often ugly scene with me instead of understanding and learning why i was upset, and why i was asking for certain accomodations—–

because i had just gone through the very ugly and deeply traumatic break up of a friendship with a person who had become like a family member to me, who suddenly turned against me with full on inexplicable fury that year——

and because by that time, i had already developed a huge leg tumor the size of a basketball on my left inside thigh area, which made it hard to get in and out of the driver’s side of ANY vehicle. I began to develop lymphedema in both legs in 2005, due to having to spend years of not being able to sleep anymore in my bed but instead, sleeping sitting up on my already delapitated living room sofa with my legs and feet down.

My life since then has plummeted into a spiral of failing health and isolation and loneliness. All of the bullying i had taken by that time from neighbors all around me where i live, was starting to erode my physical health and strength. Today, i am a hot mess of heart palpitations, anxiety, PTSD, and insomnia, along with my leg issues.

Today, after going through a string of several abusive caregivers, i finally have Connie as a caregiver—and she is a friend and ally to me. She has been my caregiver for almost 3 years now. It was due to her,—-on her days off,—-and a kind beat coordinator officer at my city’s local police department, that i finally got some resolve to many of my issues. Most of the bullying has now stopped, except for when one neighbor who knows my situation and who knows how to best upset me, goes to talk to them and stir them all back up against me again. Those neighbors today are still a bad problem. The street noise is still a huge sensory issue that causes me daily meltdowns. Because people drive my street like it is a raceway/highway—and it is loud. I am “blessed” with tin buildings all around, which further amplifies this noise. Cars with thunder bass systems are the topping on this nice hellish cake.

But now i am at the point where i feel nothing but depression and despair anymore. I am 56 years old and life has literally passed me by. I have never known the joy of having long lasting close warm friendships, nor been able to experience a romantic relationship. I love people, and i am a people person, but i now have a great fear—–i always have—but today it is even greater—of being abandoned—-of having people turn on me and be mean to me—-so i hide——then i latch onto certain things like certain roads, highways, and electronics—- and make them my friends. I sometimes latch onto these things with my all. Because the loneliness hurts that much sometimes.

I am too young to feel like this. I am too young to die. But i feel as if i am living on a sort of death row, because each and every day is the same damn thing, over and over again till i want to scream. I wake up, do the same things every day, and then repeat the next day over and over. I only feel happiness when Connie is here. But iam now way too afraid to venture out and do anything alone—-for fear of being misunderstood, and for fear of people getting angry and saying mean things because they don’t understand and don’t want to understand. For fear of being rejected, shunned, ignored.

I was denied lymphedema care by a home health agency yet again because the physical therapist who came to see me, deemed my Autism as not real. I had a meltdown and screamed at him to leave my house. So i continue to suffer without treatments for my legs.

I don’t know where i’m going with this blog. But i am writing it because i want to educate people to let you all know what it is like when one is left to fall through the cracks and fail, because they got thrown away time and again. Imagine your own family shunning you because you’re Autistic and they don’t get that this is not a behavioral problem, but a disability, a very real disability.

Imagine your family putting tape after tape into your head that tells you you will never have a job, you will never learn how to drive, you will never have friends, you will never have a boyfriend,——that you are less-than, because you are disabled.
That’s been my life all the way.
I also write this because i need help–and i know that help is out there for us—i just live in the wrong geographical area, ya know?
That is why i turned to the speed trailer for comfort. I was happy when it was here. Yes, it calmed the traffic way down. But i also loved sitting outside to watch it working. The way the numbers would come up, and then down, the way the fonts look that the manufacturers of this speed trailer use, the way it lights up with a bright red “SLOW DOWN” sign if people drive too fast past it—and if they drive any faster, a strip of blue and red light bars flash on it—-began to really fascinate me.
Now i don’t have the speed trailer, and now my depression is even deeper, and i have had to go back on pain medication because my right leg is now in excruciating pain all of the time.
I did make a Go Fund Me page, But i am not getting many donations.
Like i say, i don’t know where i am going with this—-just to let you know that life does not have to be this way for us. And to plead with people to please stop ignoring us. Listen to us. Accept us. Love us. We are human beings, and God didn’t make us Autistic so you could throw us away.
For anyone interested, here is my Go Fund Me page.

Broken Into Millions Of Pieces In A Long Tunnel Of No Hope In Sight

I am having yet another bad night of searing leg pain so bad i cannot sleep at all. I know this came on me because when the cops took the speed trailer this time, the mental and emotional trauma i went through, put my whole body into a shock, a mental and physical state of shock it still hasn’t recovered from.

I have no in real life local friends who will visit me, and take me places. My family still to this day shun me and think of me as a plague and a monster, with the exception of my mom and one sister in Arizona.

I am housebound stuck at home unable to go places and do things i want to do. I have spent my whole life lonely, always on the outside, being ridiculed, misunderstood, muzzled, not heard, not respected, talked over, etc. So from an early age on, i began to escape by latching onto certain roads, highways and electronics that appealed to my eye, and i would make them all into sweet cool angelic friends who all got (understood) me, and adapted me like their sister. I made this speed trailer into an imaginary friend also……..but who was very real to me. Yes, i am still able to have her in my life without the speed trailer….but it is not even close to being the same as when i imagine her being a part of that speed trailer.

In the speed trailer, she and i really had many an awesome time talking, giggling, and just being ourselves, if that makes sense. Her cuteness, wit, and sunny sweet personality, big brown eyes, and dark brunette shiny hair fit this speed trailer to a T. She also had a beautifully kind heart. She was a very compassionate soul. We were kindred spirits.

You see, i have had to live for the past 25 years in a neighborhood where i get bullied alot by the men in an auto shop across the street, ——and her presence here in the speed trailer every afternoon from 12 noon through 7 to 8 PM, was, for me a real Godsend. It got me finally to venture out of my house and sit in my front yard to enjoy watching this speed trailer working, as i would mentally in my head, talk to it (Selena). Because of this, i began to feel more relaxed and at ease, and would talk to many of the passerby who would walk by, or ride their bikes by. I even warmed up to some of my neighbors who i had previously had problems with.

Now with it again gone, i am back in my four-walled box again, afraid once again, and the street is back to the loud fast highway that i so hate.

When the police took the first speed trailer, ii wasn’t as bad because i was still able to go visit it 3 times a week, because they placed it on a local street where i could still go see and talk to Selena in that other speed trailer. This time around, they just took the trailer that they gave me this time, —-and now they are telling me that it is the one that is broken. Not the one they had originally said is broken. I can’t find out for sure though because my emails and phone calls to the traffic dept at the police station all go unanswered.

This time around is awful though, because even though i feel as though Selena still comes to see me…..i still feel an emptiness and loneliness that i cannot describe. I feel as though i lost Selena’s daily six days a week protection of me from the harsh street and the harsh mean bullies and other harsh mean neighbors. I lost my ability of being able to see her in the speed trailer. And this time around, no one will let me know what has happened to this speed trailer or even where they deployed it. I feel as though i am never going to get to see that speed radar trailer ever again. I am beside myself with distress, and i am mostly deeply depressed and don’t even want to wake up each day anymore, because he speed trailer seems to be gone forever this time.

I am broken over this. Way beyond broken. Completely broken into pieces. And i feel as though i am growing sicker and that i have grown much older than my actual age of 56.. I no longer have my beautiful afternoons with Selena in the speed trailer. I am actually deeply sick inside over this. I so wish more people would understand……especially the police. Please.

https://www.gofundme.com/2ckkdc4

103

 

Can My Old Happy Life Be Salvaged?

I apologize that i am such a Debbie Downer lately, but sorry, my life is alittle too much to bear right now, and i cannot hold it in when i need to vent.

I wish i could actually roll the clock back to 1996, when i was still doing well enough to be able to get in my car and take long drives to escape this nightmare neighborhood.At that time in 1994, i tried moving away to two apartments—-both of which had common walls, common floors, the loud staircases, etc…..and it was such a horrible sensory nightmare to me, i had to move back to this hell hole each time. Both landlords from both places got angry with me and asked me to move.

I did not know i was Autistic at that time.

Then in 1996 came several opportunities…..the first one came when my parents and some of my family moved to Idaho. I could have moved there, as it was close to Boise…..but i didn’t because i would have missed my new Christian Singles friends, and the ocean too much.

In 1996 i was also deeply involved with an excellent Christian Singles group that met up in Arroyo Grande and we did lots of fun things. Several of my friends had places or knew of places i could have moved to in the AG area——but by then my fear of moving and getting into another bad situation and having to come back here had made me too afraid, it became to be a fear so great that it placed me at the point of no action……i didn’t want to move to Idaho……and i was afraid to move anywhere, even though i badly wanted to leave Mean Bully Monster street—- for fear of it not working out yet again. And me having to move right back here to Mean Bully Monster Street.

Now, 20 years later, my physical health AND mobility is gone. I had to finally give up driving in April of 2012—-and i sold my beloved little Toyota Tercel that same summer.

Tonight, i find myself now in a deep depression because i have come to rely on a machine——a speed radar trailer—-to keep me and the street of bullies and hot rods—-calm. The police only have 3 of these machines, so when they take it off of my street, i am back to Square One again, having screaming meltdowns all afternoon and evening long, because of the loud fast manner that people drive this street when the speed trailer isn’t here.

I know now that i should have moved either to Idaho or to one of the places i could have moved to in 1996. I know now in hindsight that had i gone ahead and made one of those moves then when i still had good health, i would not be in the hell i am in today. I know now that i would have been going to community college and prepping myself for a career in graphic arts and web design. That today i would most likely be married with two children of my own, and no Lymphedema on my legs. No huge basketball-sized Lymphedema tumor on my left leg to have to suffer with. I would still be driving. I would even be traveling, something else i have always loved doing.

I am not damning myself because i’m Disabled. I am damning myself for making some very, very, very bad choices in the past which led up to the downfall of my health……

Yes, some good has come out of all of this.

I found out i am Autistic, and what it means to be an #ActuallyAutistic adult. I have learned much about Disability Rights, and have gone onto meet a great many awesome friends through the Disability Rights community online.

But i would be lying if i said i do not miss being able to walk and drive and go places. I am now mostly stuck at home, and that is what bothers me the most….and what bothers me even more is that now i am forced to have to listen to the highway that my street is, even though the posted speed limit is supposed to be 25. People routinely scream through here, and even hot rod…..at sometimes double the posted speed limit…..and yes, now i have latched onto the two police radar speed trailers for dear life as the only protection i have against that awful noise, which is like knives, whips, and chainsaws all over my body from my scalp, to my arms, to my back…….and it is VERY painful to have to listen to this every afternoon and evening—and not have ANYWHERE to go to get AWAY from it.

And Now? I am trying to salvage what i have left of my mind, and health. And i cannot do this without financial help. I have begun to save money away in a jar, and i have also created a Go Fund Me page.

I am hoping i can finally get the help i need, first to get my own speed trailer, and then to move from here, to a community where i will have friends and where i will be connected and involved again.

My Go Fund Me is: https://www.gofundme.com/2ckkdc4

Below is a picture of the speed radar trailer i had which made me feel safe and secure in my own home while it was here. I so wish the police would understand my plight and get it back here for me.

031

You Took My Best Friend Away

I will tell you exactly how i am doing ever since the police took the speed radar trailer……
I am an Autistic person whose brain is wired differently
Changes can be often very traumatic for me
Ever since the police took the speed radar trailer away from me
i can barely sleep.
i have to take two Ativans instead of one to get through my days
I feel sick all of the time
i feel like i have butterflies of dread in my stomach all the time
i dread having to wake up each day
my street is right back to wild fast and loud again
i feel as though they took my best friend away
when they took the speed radar trailer away
for it became someone who i “talked” to, someone who understood me
someone who was just like a real Guardian Angel
that kept the street and me calm
that even kept the bullies from tormenting me
i was even going outside to watch it working everyday
i was actually warming up to some of the people i would meet each day
while sitting outside watching the sign
ever since they took the speed trailer
i have felt even more housebound and boxed in again
i have gone back to not feeling safe here again
i feel very vulnerable and scared again
i cry alot
i feel a deep ache and an emptiness in me
this is what happens when you take something away that an Autistic person was actually attached to
there is nothing wrong with me, this is how many Autistics cope with the harsh world outside that still to this day does not get or understand or accept us as we are
i liken the taking of this sign to a cruel father coming into his little girl’s own bedroom
right when it is at his little girl’s bedtime,
and taking her treasured teddy bear that she sleeps with for comfort safety and friendship and yanking it cruelly away, then expecting that little girl to go to sleep quietly
just as normal, without even one little whimper, when all that little girl wants to do is cry and sob brokenheartedly
Because Daddy took her treasured teddy bear
who was her one true friend on earth
I am lonely and have very few in real life friends
all of my good friends are on Facebook, but live in other states and other parts of the world
my family has always shunned and ignored me—-not my mom.—–but all the rest of them have always shunned me, and they stilldo to this day
so as a little girl
i learned to develop a safe world of my own—-my own cocoon— where i go where i have imaginary friends
that i made out of certain
roads
highways
electronics
i did this then, i still do this now, because of so many things
and yes, this included the two speed radar trailers that were placed on my street this year
and the second one i became even more attached to than i did the first one, because of how the number fonts looked on it
how the numbers would go up and down in real time
i loved its bright red SLOW DOWN sign
i loved the way it looked like a petite cute sign trailer
i made “her” my friend again
when they took her, they took my main source of daily happiness and joy away
i have once again lost my ability and freedom to feel i can go outside
i lost her protection
i have been a real mess without that speed radar trailer
sick and cannot sleep or eat much.
yesterday i even imagined myself as i got up from my computer, just walking away out of my body and walking away from all of this,
ifelt i could actually do this and walk to where i would once again feel safe
yes, i almost had an out of body experience yesterday
this is exactly how deeply and profoundly it is affecting my whole being having that speed radar trailer gone
i really want and need that sign to come back
if not, i need to get my own, please.
Please help me to get that so i can be at peace again.

https://www.gofundme.com/2ckkdc4

049

Alone

It is bad enough having to be housebound,
stuck in a small 550-square foot box
with no in real life friends
all of my huge family with the exception
of my mom, all ignore and shun me too
and now tonight, my internet has gone out
my only real link to my online friends
is gone when this happens
i am Autistic and physically disabled
i am alone, i am so very extremely lonely
i did have a nice Guardian Angel
who came onto my street twice now
to help calm the loud hot rods
and she made me feel safe enough to
even come out of my house
for the first time ever,
because she was a speed radar trailer
and i got fascinated by how it worked
and looked, so i made a nice friend out of her
i badly need her to come back to me
she was a real friend and my protector
from all of the harsh mean bullies
i feel even more alone and vulnerable tonight
now because my internet is out
i badly need to get my own speed trailer
and to move whee i have nice friends all around me
who will visit me, do things with me
and take me places
Please help me—please donate,
and if you cannot, please share this appeal.
I badly need a real way out, or i feel
i will be dead soon of a lonely broken
heart and spirit
because my health can’t take this
environment i am forced to live in much longer.

https://www.gofundme.com/2ckkdc4

034

The Emptiness Is So Loud

050

When i look east on my street,

all i see is an empty spot where the

speed radar trailer once was parked

It makes me feel an emptiness so black and dark i cannot describe

I am Autistic and physically Disabled also I am lonely housebound,

unable to get out and go places and do things

all of my good friends are all on Facebook and live a long ways away

my caregiver is my friend also but she is unable to take me places and be here more than

my allotted hours

most of my family all shun and ignore me

i still have many painful issues with bullies in an auto shop across the way

when the speed trailer was here, it actually made me feel safe

to come out of my house for the first time

and it became a really cool imaginary friend to me because of my loneliness

The speed trailer actually even got me outside as i was fascinated

with how it looked, and worked

it was a very real security and a very real therapy to me that i grew to really need

i understand the police only have 3 speed trailers and a whole community to serve

but this still does not change how life has once become

again since they once again took it from me

i don’t understand why the police cannot apply to purchase more speed trailers

so that people like me who are trapped having to live here

with no place to go to escape the awful loud hot rodding

and i just have to sit here and listen to this loud hot rodding all day long

can have a working speed trailer here on a regular basis

when it calms the street

when it calms me down

when it brings me a way to have some actual enjoyment in my life

being able to watch it working everyday

i know they have 3 speed trailers

why can’t they purchase at least 3 more?

Then i can have one here

I plan to move by Spring of 2018

But until then, i am in agony

because of the noise and the loneliness

and nothing to do now because the speed trailer

once again has gone away

i so wish people would understand my plight

there is nothing wrong with me or my mind

this is the way i have always coped with my life as an Autistic because most people

misunderstand me and are so rude to me

so i have imaginary friends that i make out of certain

roads

highways

cable/satellite boxes

stereos

car stereos and

now two speed trailers that have been on my street,

a Wanco one and an RU2 Systems Fast 870

that i feel in love with even more than the Wanco one

which is why i created a crowdsourcing page

to raise the funds to purchase my own speed radar trailer.
Would you please share my page widely and those who can,
please donate so i can purchase the speed trailer pictured above,
and not be without it anymore as long as i have to still live here on this noisy street?