Tag Archives: Autistic

I Am Autistic—Say The Word

Flowers-2

One afternoon in April, i was upset, so i wrote a series of Vaguebook posts, and because i write when i am upset……and i mainly write to educate the general public about what it is like to be a middle aged adult who is Autistic so people will understand, get us, and accept us, i want to compile my vaguebooks all into a blog post.


What is it that helps flowers to blossom and bloom to all their glory? It is not yelling at them to grow already, and standing over them and forcing their peddles to unfold when they aren’t ready to unfold. And to be callous and cold with them. They need patience, actual warmth and affection, to be slowly and lovingly cultivated, and they need water, sunshine, and food.


For me, it is not being harsh and critical of me. And cold and callous. For me, i grow when i know i am truly accepted and when i am okay to be me. When it is okay for me to say “I am Autistic.” When i know my feelings, both happy and sad, and the ones that are painful too, are truly validated.


I don’t write to be mean and covert. I write whenever i cannot verbally say how i am feeling.
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Post One.
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“Trigger warning for the word stupid and the R word—and for also graphic depictions of child abuse
There is a valid reason why i have a chip on my shoulder as an adult.
It comes from growing up being told and made to feel
like i was all wrong all the time, every day, 24/7
that i didn’t have a right to my opinions
or to to say what i felt that how i felt, and i,
was just too weird
everything i ever did or said was
wrong, stupid and not good enough
being called the R word all the fucking time,
not just by the schoolkids but even by my own siblings
being silenced, muzzled, and having my feelings,
and me, always dismissed, invalidated and erased
being treated like my autism was/is a behavior
or that i use my autism as a shield, crutch, etc.
being told wrongly so that i was just a
lazy, spoiled, and selfish rotten brat,
when so many things
were and still are difficult for me to do
being told also wrongly so that
i never appreciated what people did for me,
when i did, but just did not know
how the fuck to show it
knowing my own father actually hated my guts
for the way i was even though i could not help the way i was
because i was BORN Autistic
imagine if you will what it is like
to go to school and have no safe zone there
where you can be you and
you cannot get away from all of the scary sensory stimuli
and you cannot be you or get away from
all of the unwanted scary sensory stimuli at home either
because your you is too wrong, too weird, to matter
you are expected to, forced to act a certain way,
and if you don’t, you are yelled down, scolded, and BELITTLED
all you can do is just go to your room all the time
because that is at least a little bit of a safe zone for you
always being talked over and interrupted
when i try to talk and express myself
yes, they did that too
and then they would interrupt
to finish all of my sentences for me,
not knowing what i was REALLY going to say
close spaces, having to be forced to endure being kissed,
or having to stand too close to others in a line
being beaten on my legs and buttocks growing up
beaten so hard it left welts that would raise up and bleed
having my hair and ears pulled so hard my head hurt
loud men yelling especially when angry
and my music–when i can’t even listen to my rock music
because the family music is country,
so i have to listen to that or i get in trouble for that too
a fear so bad i used to have to always
memorize the station my dad had the car and family radio on,
so he wouldn’t find out i was listening to the rock stations
my dad, brothers and sisters always pissed,
always irritated with me
i have bad flashbacks to all of this all the time
so that today, when anyone can present to me as angry,
even if  they aren’t, i am hypersensitive to it

i still take what people say and do wrong all the time
because of all of the hurts of my childhood
because i think i am being chastised and muzzled yet again
I have Complex PTSD thanks to what i went through
then losing my independence again,
losing my ability to drive and do for myself
after having my independence for 25 years,
where, 22 of them i was able to drive
has brought me back to how i felt as a child,
and that is how i feel now,
like i am that child again who had no rights
and now i feel as if don’t have any rights again anymore…… “
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Post Two
“I am not abnormal.
I am Autistic.
There is nothing wrong with me
or the word Autistic.
I say the word.
People need to say the word.
AUTISTIC.
PLEASE ACCEPT ME. “
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Post Three
“My special interests are not obsessions or addictions. They are my coping mechanisms and there is nothing wrong with me having these special interests.”
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Post Four
“I write and tell my story so that people will understand.”
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Post Five
“When i yell because of the noise outside it is because that noise is actually causing me pain. People yell when in pain. People yell and cry when they hurt.”
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Post Six
“When i say that i cannot do something it is because i truly do not have the ability or the spoons to be able to do that thing.
It is not that i don’t want to do whatever, it is that some things i lack the ability to do. Sometimes i have the spoons to do some things. Other things i never have the spoons for.
Please understand and accept that.”
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In closing, my Autism is not used as a shield, crutch, nor do i mean to use it as a means to throw it in people’s faces. I often do not have the words available to me to be able to articulate what it is that i want to say, especially when i can sense i am not being heard.
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So, out comes the word Autistic. And i cannot hide my Autism, or take it on and off like it’s a coat.
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I don’t write to bad mouth people.
I do not write about my family to bad mouth them either.
I write because the family abuse happened. Because i want to let others know they aren’t alone, and how to spot the signs of abuse, and i want my family to finally read what i write and say “OMG, i did do those awful things!”
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Because i have no family to turn to, and my mom and one nice sister are both financially unable to help me more than they can, i am in a vulnerable situation where if i do not have my caregiver to help me, i am literally left to fend for myself—-and i have been left without caregivers in the past—–and that was so terrifying for me that it has caused me to become even more hypervigilant about making sure the people i love and who matter to me, always understand and get me—-so they won’t throw me away too,like so many, many others have done.
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I live in constant fear of this, and when i have any disagreement with my friends, i instantly go into a panic mode so severe, thinking they’re angry, and hate me, and it often makes things even worse.
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I wrote this into a blog because sometimes i can put things better into words by talking, but other times, like now, i can do it better by writing it. That has nothing to do with anyone but my own spoon level at the moment. I have not had very many spoons ever since the election, to be honest. Yes, i am extremely scared about the current state of our government now, too.

I Am Autistic, Not Spoiled

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I am Autistic
I am not a behavior problem
I am not a faulty broken appliance
My Autism
is a neurological developmental disability
That i cannot just take on and off
like one takes on and off their jacket or clothing
I cannot help it that i am easily triggered by
Abrupt changes
Changes happening that happens
without my first being told about it
and prepared for it
Harsh impatient angry tones of voice
Harsh impatient angry looks on the faces of others
Certain foods
Certain songs
Certain smells and scents
Certain atmospheres
Certain textures
Certain lighting,
especially if it is intensely strobe-like
The dark
Being chided or made fun of
Being told i said or did this or that
when i know i didn’t say or do that thing
Being told things are a certain way
when i knew they were another way
I am ultra sensitive to being criticized,
talked down to, condescended to and yelled at
Please understand when i am having a meltdown
it is not a temper tantrum
the meltdown has happened because
something has triggered me and
caused me sensory pain and anguish
sensory pain and anguish that is very real to me
As if i was being actually physically hit
or stabbed or whipped
it is especially at that time that
i need to be treated gently
My Autism cannot be fixed or cured
or scolded and yelled away
Nor can i separate myself from my Autism
It IS a part of me
It is all of who i am
My Autism does define me
It defines all of who i am
God made me and all other Autistic people
Please understand that I am me,
i cannot be and act the normal
that the world wants me to be.
Please understand this.
I love you, everyone.
I love you all,
and i really hurt when i feel
people don’t love and care about me.
Please let me be me and
don’t hate me for being my Actually Autistic me.

My Relationship With R, Not His Real Name…..

The following is a series of six blogs which i wrote in March and April of 2012, about the way a six year relationship ended, because i saw pictures of him this morning and this afternoon. Seeing these pictures was very triggering to me, and i am having bad flashbacks now……..these blogs illustrate how easy it is for others to still think they can get away with the exploitation, use, and abuse of the disabled community. It is cruelty, pure and simple.