My Health, And My Words

I, an Autistic adult, turned 55 years old in May.
My physical health is not good anymore.
My legs are still swollen; i still have the awful
huge lymphedema tumor on my left inner thigh.
And it is getting bigger.
I also weigh 350 pounds now.
I went through alot of heavy things beginning in March of 2012.
In that month, my next door neighbor, and friend
who i had had many problems with during the course
of our six year friendship before our final falling-out,
suddenly turned against me for no reason at all.
He said it was because he was not going to run my errands
when i didn’t feel well anymore.
But i knew it was deeper than that.
He actually couldn’t stand me anymore.
And his hostility and hate really cut through me. I could feel his hate for me through every fiber of my being.
So i knew he hated me.
All of the other times we would have our fallings-out,
We would always mend our rift and things would be
good again for the next two to three or so months.
But this falling-out was radically different…..and……
…….this one was worse and darker than all of the others.
He got very mean, and began doing some of the
things he knew were triggers and sensory issues to me……
The loud golden oldies music that
made me relive my painful childhood,
his loud TV turned up loud, and his suddenly loud banshee yelling,
followed by several ugly emails where he slammed me and said i was
essentially a worthless piece of dirt who was lazy and
who had zero value.
He even threatened to call the police on me if he heard my music or any of my meltdowns.
He also went to all of the businesses where i was having problems with employees and their friends who were bullying me (and still are)
to let them all know i was making videos.
I suddenly began getting alot of hate comments on those videos
and even had to take some of them down
as he himself would flag them and threaten me
even though i needed to tell my story
He was done with me. Done.
I have deep PTSD and trust issues from childhood because so many people don’t understand Autism, and we get mistreated, misjudged, attacked, accused of, called tragedies and burdens, and essentially thrown away in the trash.

My mom could not talk to my friend this time. No one could.
His mind was made up.
My whole world collapsed around me, and i suddenly became afraid to step foot out of my house or drive anymore.
I began to have horrible frightening nightmares about him,
and night terrors.
I cried alot. I went into very deep dark depressions.
I began to fear i was going to die and go to hell like he
had told me i was headed to, in one of his awful emails.
My leg tumor which had developed a year before, got bigger,
and my legs swelled even more
He moved out that April, and on his last day here,
he stood outside and glared at me before leaving.
Thankfully, i had finally found a nice caregiver to take over and help me.
She helped me with my housecleaning, cooking, dressing, bathing, showering, all of it.
I sold my little white ’95 Toyota Tercel 2 door coupe that summer.
I have not driven since April of 2012.
I lost the ability to handle driving.
And then my caregiver turned very moody and mean, and i suffered another huge mental blow, so bad, i ended up chopping off all of my beloved dark red hair.
It has grown back again, but i still go through spells of frustration where i want to chop it all off again.

Since then, i have been through several very abusive caregivers
who would grill me about my meltdowns, demand lots of money from me for gas, and other mean things—-some of them would really yell at me
and i also went through more friendships that never lasted.

Today i finally have a kind compassionate caregiver who
Has become a real true friend and ally to me.
But when she is not here, i am all alone and lonely, sleeping all of the time now, and
i now feel dizzy alot, and just…..just…..really tired.

I come from a large family, but only have acceptance and love from my mom and two of my three sisters.
I call my mom every single day, and sometimes more than once a day if i am in alot of distress.
I have absolutely no contact or relationship with my three brothers, my other sister, nor any of my nieces and nephews. In fact….the one sister and one of my sisters-in-laws has me blocked so i cannot contact either of them.

I am writing this because to be honest, i feel like i am going to die soon.
And i want you all to know a few things……God puts us all on this earth, and we are all different…..
Some of us are disabled and require more care, patience and understanding.
But that does not make us bad or wrong….or less-than.
If any of you have a sibling, relative, or friend who is disabled…..
we cannot always be fixed or cured.
That does not give you any right to abuse us, and give up on is, and do it in a way that is mean and demeaning to us.
It does not give you a pass to ignore us and pretend we don’t exist. Or to financially, mentally, and physically abuse us. Or to gaslight us.

We are human beings…..and we deserve to be loved, accepted and included and to be a a part of our communities.

Please read my words and take this to heart. I honestly don’t know the course my health is going to take……all i know is that i feel as though if
i had my family
if had a group of local friends who would come visit me
take me places….to the ocean, to the nearby cool towns we have around here…..and even to any evening services at a cool laid back church where i would be truly accepted…….i may stop feeling so tired and like i’m going to die.
Please know
I say these words as truth!!
When people are alone and lonely
they lose hope……and the ability to dream and to go on.
Please don’t ignore us. Let us be who we are, and just be our friends.
And don’t give up on us.

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2 thoughts on “My Health, And My Words

  1. sofania

    Hi Melissa,

    I’m sorry you’re having such a hard time. I’ve been following your blog for about a month or so, and I just wanted to say I understand some of what you’re going through. At least you have some supportive family and a nice caregiver. Hopefully a nice new neighbor will move in. And I hope you can get help for your medical problems, too. I thought a problem like a tumor would qualify you for an operation through mediCal or medicaid….? There’s a lot going on here that I just don’t understand, but I just wanted to wish you well.

    Reply

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